Human Subjects/Privacy Policy
Note: You must read this policy and acknowledge it to continue using the system.
Important Human Subject and Privacy Policy Notice
THIS NOTICE DESCRIBES HOW DATA COLLECTED FROM YOU MAY BE USED AND DISCLOSED AND HOW YOU CAN GET ACCESS TO THIS INFORMATION. PLEASE REVIEW IT CAREFULLY. This website complies with various privacy and data protection rules pertaining to human subjects research. Further, it is governed by U.S. Government laws, known as the Common Rule (45 CFR 46), and any pertinent local and/or institutional regulations. Please read the information below carefully. Contact the person listed in the Contact Information of this notice for other concerns.
Use and Disclosure of Information
Your name, email address, and phone number (if provided) may be used to identify you on this website. This information will not be disclosed to third parties, or outside of the organization for which the information is being gathered.
You will only be identified to researchers by a numeric identity code, not by your name.
Information about the studies you have chosen to participate in, as well as information about those studies, may be disclosed to researchers and others (designated privacy officers, regulatory affairs persons, compliance associates, etc.) in your institution.
In agreeing to be a human subject through this website, please know that you may be asked questions to determine your suitability to serve as a subject in any number of studies associated with the site.
Individual Rights
As a human subject participating in a study, you are protected by three universally accepted principles behind the conduct of such research. These are respect for persons, beneficence, and justice. Thus, you have various rights which include being informed about:
- the nature of the study meaning the purpose, the methods, the data which will be collected, and the level of risk involved,
- the time commitment and any compensation,
- your participation being voluntary,
- what to do should something occur unexpectedly (known as an adverse event), and
- who the investigators are and how to contact them.
Your Institution's Duties
Your institution is required by law to establish a human subjects' protections committee, often known as an IRB or Institutional Review Board.
Your institution is required by law to maintain the privacy of the data (surveys, recordings, specimens, etc.) you provide during the course of the study or investigation. You may ask about that.
Your institution is required to abide by the terms of this notice herein.
Complaints
If you believe your privacy rights have been violated, you may file a complaint with the institution, or with the Secretary of the U.S. Department of Health and Human Services.
Effective Date
This notice is effective immediately.
Contact Information
If you have any further questions about these rules, or your rights and responsibilities, please contact: hheymann@ucdavis.edu
You must acknowledge and agree to these terms before you may use the system. If you have any questions, you should contact the contact person listed above before you acknowledge the agreement.